Privacy Policy
Effective Date: June 15, 2026
The International Children's Anophthalmia Network Inc. ("ICAN," "we," "our," or "us") respects your privacy and is committed to protecting the personal information you share with us.
This Privacy Policy describes how we collect, use, disclose, and protect information obtained through our website, supportforam.org, and through our programs, services, events, communications, and fundraising activities.
About Us
International Children's Anophthalmia Network Inc. ("ICAN") is a Pennsylvania nonprofit corporation dedicated to supporting children and families affected by anophthalmia, microphthalmia, and related conditions.
Organization Name: International Children's Anophthalmia Network Inc.
EIN: 31-1510365
Contact Email: inquiry@supportforam.org
Information We Collect
We may collect information that you voluntarily provide to us, including:
Personal Information
Name
Email address
Phone number
Mailing address
Information submitted through contact forms
Event registration information
Volunteer application information
Donation-related information
Information About Children and Medical Conditions
Because ICAN serves families affected by anophthalmia, microphthalmia, and related conditions, parents, guardians, or caregivers may choose to provide information about a child, including health-related information, diagnoses, treatment experiences, or support needs.
We collect such information only when voluntarily provided by a parent, guardian, caregiver, donor, volunteer, or participant.
Donation Information
When you make a donation, payment information is generally processed by third-party payment processors. ICAN does not store complete credit card numbers or payment card security codes on its systems.
How We Use Information
We may use information we collect to:
Respond to inquiries and support requests
Provide services, resources, and support programs
Process donations
Register participants for events and activities
Communicate with donors, volunteers, families, and community members
Maintain organizational records
Improve our programs and services
Comply with legal obligations
Protect the security and integrity of our organization
Sharing of Information
ICAN does not sell, rent, or trade personal information to third parties.
We may share information in limited circumstances:
Service Providers
We may share information with trusted service providers that assist us with website hosting, payment processing, event registration, communications, recordkeeping, or other nonprofit operations.
Legal Requirements
We may disclose information when required by law, court order, government request, or when necessary to protect the rights, safety, or property of ICAN, our participants, or others.
Organizational Changes
In the event of a merger, reorganization, or transfer of assets, information may be transferred as part of that transaction.
Donations and Payment Processing
Donations may be processed through third-party platforms such as Stripe, PayPal, GoFundMe, or other payment service providers.
These providers maintain their own privacy policies and security practices. We encourage donors to review the privacy policies of any payment processor used when making a donation.
Children’s Privacy
Our website is intended primarily for parents, guardians, caregivers, donors, volunteers, healthcare professionals, and other adults.
We do not knowingly collect personal information directly from children under the age of 13 through our website. Any information regarding a child should be submitted only by a parent, guardian, or authorized caregiver.
If you believe information has been submitted directly by a child without parental consent, please contact us and we will take appropriate steps to remove it.
Health-Related Information
Families may voluntarily share information regarding medical diagnoses, treatments, healthcare providers, or related experiences.
While ICAN takes reasonable measures to protect information entrusted to us, ICAN is not a healthcare provider and information submitted through our website or communications may not be protected by the Health Insurance Portability and Accountability Act (HIPAA).
We encourage families to share only the information they are comfortable providing.
Data Security
We use reasonable administrative, technical, and organizational safeguards designed to protect personal information from unauthorized access, disclosure, alteration, or destruction.
However, no internet transmission or electronic storage system can be guaranteed to be completely secure. Accordingly, we cannot guarantee absolute security.
Data Retention
We retain personal information only for as long as reasonably necessary to fulfill the purposes described in this Privacy Policy, comply with legal obligations, resolve disputes, maintain records, and support our nonprofit operations.
Your Rights and Choices
Subject to applicable law, you may:
Request access to personal information we hold about you
Request correction of inaccurate information
Request deletion of personal information
Request that we stop contacting you regarding future communications
To make such a request, please contact us at:
We may need to verify your identity before processing certain requests.
International Donors
Although ICAN primarily serves participants in the United States, donors may reside in other countries. By providing information to ICAN, you understand that your information may be processed and stored in the United States.
Third-Party Links
Our website may contain links to third-party websites, resources, or service providers. ICAN is not responsible for the privacy practices or content of those third parties.
We encourage users to review the privacy policies of any third-party sites they visit.
Changes to this Privacy Policy
ICAN may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated effective date.
Your continued use of our website after any changes are posted constitutes acceptance of the updated Privacy Policy.
Contact Us
If you have questions about this Privacy Policy or our privacy practices, please contact: International Children's Anophthalmia Network Inc.